Monday, October 18, 2010

You've come a long way baby!

January 10, 2009 8 months post transplant and today October 18, 2010 29 months post transplant.

Was putting Sam in his stander this morning and he was looking so cute I wanted to take a picture of him. Grabbed my cell phone since the camera was out of batteries and snapped a shot. Was thinking about this Blog I started close to 2 years ago and let fizzle so decided to pull it up. Figured I might attempt to resurrect it. Decided to start with a "then" and "now." The phrase "You've come a long way baby!" fits perfectly!!


  1. Hi Sam

    We're so proud of you! You're such an amazing little boy! You've come so far and inspire our family.

    Lots of Love!

    Jen and Girls in MA

  2. I don't know if you are still reading these comments but I didn't know where else to find your e-mail. I was wondering if you could tell me what happened with Sam between the ages of 3 and 6. My son is 3 years old and he got braces when he was 2, around 28 months he just started walking the wrong way then he went into a pretty big physical regression. Since then he keeps having different regressions but he is able to progress and then regress. We say a genetic doctor monday and he is testing for Leukodystrophy - Krabbe, MLD, and ALD. I was just wondering if anything significant or insignificant happened during that time. I know all I can do is wait for the results to know for sure what his future will hold but at the same time I am so scared, this is going to be one of the longest 3 moths of my life.
    Thanks in advance for your response.