Friday, August 26, 2011


Jenna, please e-mail me. I can't post on your blog and cannot find your e-mail either! czfljo at gmail dot com is my public e-mail. I hope you see this. YOU CAN GET THE LEUKODYSTROPHY RESULTS WITHIN A WEEK!

For everyone else that comes across this blog. You can find Sam through his fan page on Facebook by searching for Amazing Sam!

Monday, October 18, 2010

You've come a long way baby!

January 10, 2009 8 months post transplant and today October 18, 2010 29 months post transplant.

Was putting Sam in his stander this morning and he was looking so cute I wanted to take a picture of him. Grabbed my cell phone since the camera was out of batteries and snapped a shot. Was thinking about this Blog I started close to 2 years ago and let fizzle so decided to pull it up. Figured I might attempt to resurrect it. Decided to start with a "then" and "now." The phrase "You've come a long way baby!" fits perfectly!!

Saturday, August 15, 2009

Day 85 - Bingo

Bingo! Life on 5200 was made much easier with Bingo. Here Sam is playing Bingo with the cousins! LONG LIVE BINGO!

Day 84 - Easter Eggs

This was the beginning of Sam's 30 day run of eating hard boiled eggs *EVERY* day

Day 83 - Sam and Sand Hill Cranes

Sand Hill Cranes show up regularly at Grandma's house. Sam loves going out and feeding them.

Day 80 - The Neo

Sam is using a Neo to do his spelling and writing. A "c0-writer" is installed which allows Sam to begin typing a word and options are displayed on the screen that allow him to choose the words he wants. Sam is very easily fatigued while concentrating and this has been a really great tool for him.

Day 69 - Yahtzee

Yahtzee! Candy Land! Go Fish! War! Sam loves them all.